Serving Madison, Southern Wisconsin and the greater multiple myeloma community
"Providing an opportunity for multiple myeloma patients
and their loved ones to
come together to exchange information for mutual support, comfort, and friendship"
Multiple myeloma is the second most common blood cancer, and is considered a cancer of the immune system. It is currently considered incurable but is treatable. Multiple myeloma accounts for less than one percent of all cancers. If you are new to understanding multiple myeloma, it may be helpful for you to start with the links in the left column.
Note that multiple myeloma is very individual, and patients should discuss any changes with their physician. The information provided in this Web site is for educational purposes only.
Overview |
History |
Detecting |
Stages |
Testing |
Treating |
Funding Treatments |
Clinical Trials |
At Home: Things To Do |
Caregiver |
Blogs |
Portable Medical History |
Questions, or to receive information Email Jayne at: schwartzdon@sbcglobal.net |
Please join us at one of our regular meetings or join the mailing list for our free monthly newsletter. Family members and friends are encouraged to participate as well. You will quickly find out you are not alone. We will help keep you informed of the latest Multiple Myeloma management information.
Next Meeting
Our meeting for April 16, 2024 will be from 3:30pm to 5:30pm.
Our featured speaker will be Dr Aric Hall from the Carbone Cancer Center
at the UW. He will join us at 4:30 PM CDT.
See the current newsletter for information about:
- From the HealthTree Foundation -What Is Myeloma Coach?
The Myeloma Coach program is a free program focused on helping patients find and use the best myeloma resources. They understand that having multiple myeloma is not easy so they have put together a team of myeloma patient and caregiver volunteers who can help you. Whether that means helping you find a myeloma specialist, learning about financial resources, or using online tools that can help you live longer and better with multiple myeloma.
Current newsletter (PDF)
Upcoming Meeting Speakers:
- Dr Zhubin Gahvari, UW Carbone Cancer Center will be our featured speaker
for the May 21, 2024 meeting. He will be repeating his presentation on
“Relapsed Myeloma” that he shared with us at the recent Multiple
Myeloma Research and Patient Care event. The Trillium Research update
held on October 30th. He will join us at 4:30 PM CDT.
- Please note that there will be no support group meeting on June 18th.
We will be meeting at Marshal Park for an afternoon picnic. I hope that
all that can attend will do so. Keep tuned as more information will be
coming.
- Tom Vodicka will be our featured speaker for July 16th meeting. Tom was our featured speaker at the December 2023 meeting. Tom will continue with his topic of “Life and Wills”.
Madison Multiple Myeloma Support Group monthly meeting
Please join the meeting from your computer, tablet or smartphone.
Zoom
Our virtual meetings are on the Zoom platform.
Download (free) the Zoom software here (or for various devices here)
Zoom support center for help using Zoom
Madison Myeloma Support Group Zoom Meeting
Meeting times will be in the newsletter as these Zoom invitations will be a reoccurring meeting format.
IMF SG Meeting Room 3 is inviting you to a scheduled Zoom meeting.
Topic: Madison, WI SG 3rd Tue Monthly
Time: This is a recurring meeting Meet anytime
Click to Join Zoom Meeting
Link for above if needed (https://myeloma-org.zoom.us/j/84457667535?pwd=V0lJTDNQU2FOZ1hMUkFaRmJBc0Qzdz09)
Meeting ID: 844 5766 7535
Passcode: 678275
One tap mobile
+13017158592,,84457667535#,,,,*678275# US (Washington DC)
+13126266799,,84457667535#,,,,*678275# US (Chicago)
Find your local number: https://myeloma-org.zoom.us/u/kyMbCRs05
Meeting Time: Third Tuesday of Each Month
3:30 – 5:30 PM
Location: Online via Zoom
For more information:
Jayne Schwartz schwartzdon@sbcglobal.net
or
608-244-2120
International Myeloma Foundation (IMF)
Leukemia & Lymphoma Society® (LLS)
Multiple Myeloma Research Foundation (MMRF)
Smart Patients
Forum (ask questions of the group)
Sign up for the Multiple Myeloma group
Advocacy
Donate
Trillium Fund (University of Wisconsin)
The Trillium Fund was established by our founding support group members to facilitate Multiple Myeloma research here in Madison at the Wisconsin Institute of Medical Research.
If you or your family wish to donate or send a memorial to this program, checks can be made payable to the “UW Foundation – Trillium Fund” and sent to:
UW Carbone Cancer Center,
University of Wisconsin Foundation,
1848 University Ave,
Madison, WI 53726.
Donations may also be made online at:
www.supportuw.org/give
(Trillium Fund in Multiple Myeloma Research – 112903576).
For any questions, please call Janie Winston, at 608-512-6068 or her email: Janie.Winston@supportuw.org
or curecancer@supportuw.org .
Black Swan Research Initiative
Donate
Leukemia & Lymphoma Society
Donate